A BIG Day

Today was a big day in more ways than one!

First, Graysen turned the BIG 2 today!!

I cannot believe our little man is growing so fast! Graysen has brought SO much happiness into our home and into our lives! Just looking at his smile brings a smile to our faces! His big blue eyes and cute little dimple would make ANYONE'S heart melt, not just his mom's and dad's!

We will have more pictures tomorrow, since that's when we are celebrating with presents and cake! But for now here is a picture of the birthday boy and his sister.

We had a movie day with popcorn and chocolate milk! Delicious!

Tanzi also had a BIG day today.

However, it did not start that way. When I first got there her nurse, McKell, told me that Tanzi just pooped ALL over everything!! Haha! But she got a nice bubble bath afterwards and clean clothes and bedding, so I'm sure she did it on purpose :)

On the plus side, though, Tanzi gained weight...again...and is now up to 5 lbs 13 oz!!

Shortly after I got to the hospital the medical team did rounds and decided that there was still just WAY too much output from her Anderson tube, so we would leave things as is. No changes. The MD, Dr. Bierer, did ask if anyone on the team had talked to surgery in the last couple days to maybe get some answers. No one had, but I told her what the NP told me on Wednesday after SHE talked to surgery...which was that there would be no changes. So, after rounds I left to pump. When I got back, McKell, our favorite RN, told me that there was going to be some big changes. She said that Dr. Meyers, the surgeon who actually operated on Tanzi, came by and said, "This is not working!" She thought that maybe the NJ (the tube that goes through Tanzi's nose and down into her intestine to stint open the surgery site) was now just actually an obstruction so that all the bile and gunk could NOT pass by and work itself through the intestines. So, she gave McKell the go ahead to take the NJ out completely!!

Totally didn't see that one coming!

And they stopped the suction on the Anderson.

Since Tanzi was being fed through the NJ McKell said that they would just put Tanzi back on an IV and then see how she does for the next 48 hours or so, hoping that gravity will do it's job and everything will just start to work normal. So, we are hoping that Tanzi doesn't throw up or anything and just does REALLY great with no NJ and no suction! And then we will see where we can go from there. Possibly another feeding tube, but possibly just start feeds from a bottle!! Seriously?! What a BIG day!!

And here's pictures to prove it:

Showing off her daily outfit after a nice smelling bubble bath! You can tell our favorite nurse is working because of the cute headband. McKell's the only one that ever puts headbands on Tanzi.

One last look at the NJ

McKell trying to get the tape off that's been holding that NJ in place for 3 weeks now

But the tape was being stubborn and didn't want to come off

Successful removal of the tape (that's the worst part) and one unhappy baby girl!

McKell pulling out the tube!

No more NJ!!

What a BIG ordeal that was!

Getting snuggles from a slightly happier baby girl

Tanzi with one less tube!!

Isn't that better?!

Tonight I called McKell to see how Tanzi did after I left. She told me that she's done REALLY well and hasn't had much output from the Anderson (remember that's without the suction, though) and she hasn't thrown up or anything! She said that Tanzi seems REALLY hungry and is just acting like she really wants to eat. So, McKell called surgery to see if she could just start feeding her a little. Unfortunately, they said no. They want to see how she does tonight. But it sounds like if she has a good night we can try to bottle feed her a LITTLE tomorrow!! Lots of prayers will be going Tanzi's way in hopes that she will have a FABULOUS night!!